Alternative medicine

Even this alternative medicine skeptic has found a non-traditional treatment for cancer:



Unfortunately, the close-minded medical establishment at MD Anderson will not allow this soothing medicine to be employed at the hospital during my surgery recovery.

Good news and a fever scare

Yesterday began with encouraging news and ended with a strange fever episode.

Tuesday, I flew down to Houston for a CT Scan and a few other tests. The surgeon said this upcoming surgery was contingent upon this being a good scan, showing nothing new and hopefully more shrinkage of the tumor. I spoke with a nurse at MD Anderson yesterday morning and she told me that the preliminary (she made me repeat the word verbally, "preliminary") result was that there was some shrinkage and everything looks good towards surgery. So it looks like we're still on course for the surgery next Friday. This was quite encouraging to me and Christine.

As I finished up at work and laid on the couch upon arriving home, I increasingly felt sick and extraorinarily fatigued. This accellerated to the point of causing concern. My temperature was rising steadily and was at 101.4 when I gave my oncologist a page. The normal protocol for chemo patients is to go straight to the ER if the temperature goes above 101. I really did not want to go again for yet another night at the hospital. Dr. Hoff called me and discussed the situation. It had been a few weeks since the last chemo dose. More importantly (and quite fortunately) I had blood work done on Tuesday, just two days earlier. It showed a normal white blood cell count, from which he was willing to wait this out a little longer before sending me to the E.R. The hope was that this was a virus of some sort. I made a call to my brother elders, who were at another monthly meeting I was missing, and asked for them to pray for the situation. I made an arrangement for a possible ride to the ER in the middle of the night, and then Christine helped me into bed. I curled into a fetal position, not knowing how this fit into all that was happening and how it might change the plans for the next week.

I don't know how long I thrashed there in that feverish existence between being asleep and and being awake, but it seemed to be endless. But after a while I must have fallen asleep, for I awoke at around 2am relieved it was so late. I took my temperature and the fever was gone. This morning, I felt much better, almost as if the evening before was just a bad dream. Maybe it was.

So passes yet another twist and turn in this odd battle. I'm not attempting to make sense of this episode - I don't really have the energy. I'm just going to let this one go.

Building Strength

I haven't written lately because I have been very beaten down by the chemo. My typical day for the last few weeks has consisted of going to work and sleeping the rest of the day. My blood levels had taken a beating from the chemo, which caused me to become anemic. My levels are just now getting back into the normal range. This week, I am starting to feel some significant strength coming back. I spoke with the nurse and she told me it is time to start pushing a bit of exercise to gain as much strength as possible before surgery. Right now, I am in such shape that walking from the parking lot to my desk gets me out of breath. I told her I enjoy biking and she said to begin at five minutes a day and try to build up in the coming weeks. She noted that it will be quite difficult, even painful, for a while at the start. "At the start?!" - I've only got a few weeks before the surgery!

So that's what I've been doing the past few days. I tell you all this reluctantly, because I know full well that in doing so, I will find myself more accoutible to actually keep this up. My inertia factor is high right now and getting out to exercise takes more initiative than when I was well (not to say I was successful then, either!) But the motivation is there - the more strength, the better the surgery recovery will go.

Today was an especially beautiful winter day. I brought along my camera so I could share with you the park near our house that Christine and I enjoy. This park is a big reason we chose to live in this neighborhood. I wish Christine were well so that she could enjoy it more. The bicycle path from which these pictures were taken just completed last year, so many of these areas in the park still seem new to me.

I am so behind on everything, since I have had no energy to do anything I need to do. I'm taking the day off today to get through a few months of mail. I told Christine that in life I'm behind in everything but pooping. That's part of the deal, I suppose. Chemo is rough, but it is better than the alternative. I still find Jesus' wisdom as relevant as ever, "...seek first his kingdom and his righteousness, and all these things will be given to you as well. Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."

New life

Here I am with my newest niece - Samantha Noelle Peck, daughter of my sister, Susan and her husband, Mark. Beautiful Samantha was born on 12/29. This picture was taken two days later. As you can see, Samantha has managed to get me in a rare good mood (I had just finished taking round 5 of chemo).

Congratulations, also, to Rollin and Amy Bredenberg for being matched with their adopted baby! You can read about her on their blog. Rollin is the behind-the-scenes man behind this website - he created and maintains it for me.

Rest beside the weary road

And ye, beneath life�s crushing load, whose forms are bending low,
Who toil along the climbing way with painful steps and slow,
Look now! for glad and golden hours come swiftly on the wing.
O rest beside the weary road, and hear the angels sing!

It Came Upon A Midnight Clear, Edmund Sears, 1849

Schedule for surgery, etc

The surgery is confirmed for February 18. I am (relatively) very glad to be having this because the way cancer works (in my amateur yet ever increasing understanding), chemo can shrink and stabilize cancer and can kill very small tumors. But in order to be cured, you have to get rid of it all. In many types of cancer, such as mine, this means physical removal of all cancerous cells. As horrible as surgery is, it is minor compared with the alternative. Come to think of it, I guess that's the whole idea.

The area of concern is physically located within the pelvis. Dr. Rodriguez-Bigas says it is like trying to do surgery in an ice cream cone from the top. The problem is that there are so many important organs, nerves, and miscellaneous anatomical tubes crammed into the cone. That is why he will be doing it together with an extra pair of hands - those of Dr. Wood, who is another surgeon at MD Anderson. They way I understand it, he is a specialist in these ice cream cone surgical techniques.

On another note, Dr. Hoff's team has decided to continue my chemotherapy to keep hammering on the tumor, increasing the chance of success of the surgery. While I have always decided in the past to do my chemo at MD Anderson, I have decided to do the next two rounds at UT Southwestern in Dallas. In the case of trouble and complications, I believe it is important to stay "on the radar" of the team at MD Anderson. But I'm going to do it here because these rounds are going well in terms of any odd reactions, and because I am getting very fatigued and sick and the travel is getting difficult. The MD Anderson and UT Southwestern people have agreed to this arrangement.

While I am quite frustrated due to my lack of strength and my feeling sick these days, it will be better to be at home for these coming holiday weeks than driving back and forth on I-45. So I am glad this plan has worked out the way it has.

Here is the plan:
December 28 - chemo round 5 in Dallas with backpack chemo hookup for 48 hours
Jan 10 - chemo round 6, same deal
Feb 8 - CT scans to get final look before surgery. If no surprises or new cancer, surgery will go forward
week of Feb 15 - set of meetings with lead surgeon Dr. Rodriguez-Bigas, Dr. Wood, and Dr. Hoff
Feb 18 - Surgery. Recovery is 5-7 days in hospital, followed by 5-7 days in Houston area
Feb 19 - I turn a hard-fought-for 37.

Pushing the envelope

We're trying to pack up to get back to Dallas, but I thought I'd give a brief update on how the meeting went this morning...

Dr. Rodriguez-Bigas is willing to do the surgery. As he put it, he's willing to "push the envelope" in my case. The surgery is difficult, involved (probably two surgeons) and has many risks. He said two years ago he wouldn't even be having this discussion, but with the newly available chemo agents, taking out isolated metastatic tumors like this one may be worthwhile towards hope of long term survival.

I'll write more later, but surgery plans are in the works. It looks like it will be Feb 18. I think they are going to have me continue with at least two more more rounds of chemo before then.

More details later...