Free printed cancer materials

The National Comprehensive Cancer Network provides some high-quality booklets that are written by groups of oncologists at the top cancer institutes in the country. They are about 30-pages each and are kept up-to-date every couple years. These are good for patients, family members, pastors, friends, or anyone who would like trustworthy high-level information on various cancers and cancer-related treatment issues. The catalog is here. The booklets are also available electronically.

Some celebrating

Carl, Sue, Christine and I went out last night to Trinity Pub down at Mockingbird Station for some Irish dining and music. A little celebrating of life. I was maxed out on pain killers at the time, so I don't remember how it was. They tell me we had a good time.

Home Sweet Home

Last night, we flew back to Dallas. Sue and Carl drove back their car and ours so we could fly. It is so refreshing to be back home. I am thankful at so many levels. Still dominating my thoughts is how great it feels to be on the other side of that epidural-less hour. I still have pain now, but knowing what pain can be makes it easy to be thankful.



Looking back, when I left for Houston, there were so many things possible. And so many of them were difficult to contemplate. There was even the chance I had to be somewhat prepared for that I would not come back. And now here I am only a week later and on the quick path back to health.

I am on a couple different narcotics each day, so am not permitted to drive. I'll be just sitting here at home except when I'm not out taking one of my required walks. Being at home, though, is a good thing.

Here I am with Sir Koff-A-Lot and the other little one I hug to make me feel better (my other hug-when-hurting friend is taking the picture!). Can a guy be surrounded with more love?

Hospital checklist for surgery

Here is my checklist for what to bring to the hospital if you will be in-patient, particularly for surgery recovery. These things are also good gift ideas for your friend or family member who is going through cancer.

1. Robe. Due to all the tubes going into and out of your body, you cannot really wear anything except the all-purpose configurable hospital gown. And they will be asking you to walk a lot to recover from surgery quickly and without infection. Bring a good robe to wear over everything so you don't moon everybody on the floor.

2. Soft stocking cap. A stocking cap is the best way to quickly regulate temperatue. And it will keep you warm at night. Instead of always relying on nurses to answer your call button and mess with the thermostat every time you get hot-cold-hot-cold, just have that cap nearby.

3. Eye mask. This is the best kept secret for pleasant hospital stays. The lights in a hospital room are never completely out. And even if they are, the door is always opening in the middle of the night. Escape into darkness and try to get some good sleep by using a high quality padded mask. Ear plugs are probably good, too, but be careful - you will want to be able to hear your IV pump beeping. I have an especially hard time doing due to my poor hearing.

4. Comfort quilt. Bring your favorite soft cotton quilt or blanket to lay over your blankets. (You can also bring a favorite pillow-cover, but pillows are not usually allowed or will get lost). They never give you enough blankets and the ones they do are all scratchy. Your quilt will make you more comfortable and the room will feel a bit more like home. I've got an old tattered one my great-grandmother stiched together. I have always brought it to the hospital over the years. It's a Linus thing.

5. Medical adhesive remover. The amount of tape and dressings your skin will be subjected to is unbelievable. When they replace them or take them off, the adhesive gum left behind can take days or weeks to get off with soap and water. And the adhesive material can irritate your weak-from-chemo skin. Discomfort also comes from the residue causing your skin to stick to your clothing and sheets. Sometimes, I think doctors and nurses just leave these random pieces of tape or band-aids for no reason at all. Bring a box of adhesive remover pads like these. Get a loving friend or family member to carefully work off all the tape and residual gunk. It's not only less irritating, but is a small way to get "away" from pesty cancer reminders as soon as possible.

6. Small mirror. Useful for all sorts of things - brushing teeth, cleaning face, being able to see skin problems, etc. If you're a guy, you won't naturally have one of these in your purse, so sneak into the makeup aisle and buy one.

7. Itch helps. Anesthesia and narcotics can make your skin itch like crazy. The nurses will offer to give you a sedating anti-itch drug like IV-Benadril. I prefer to keep your mind alert so I refuse the drugs. First, I ease the itching with over-the-counter hydrocortisone (check with the doc first). Also, I will have a soft scratcher within reach. This is also something your loving friend can help with. Get them to gently rub your back with a warm washcloth to relieve the itching. Be careful - once I asked my sister to keep doing this for so long that my skin then got all red from the scratching! (It was still worth it)

8. TV Guide for the week. You'll want to know what stuff is on all hours of the day, when you cannot sleep or are bored and in pain.

9. A big plastic cup. Like the ones they serve cokes in at the ballpark. The doctors tell you to drink a lot and then they give you these dinky little styrofoam cups that tip over everytime you reach your arm across the tray. Get a big favorite cup that you can fill with a big-gulp-sized refreshing gatorade or drink of choice.

10. Take-out menus from local restaurants. People will ask if they pick something up for you on the way to visit. Or bored relatives will keep asking what they can do to help. With menus in hand, you can give them that specific thing you are craving and avoid the hospital food. You can often get the menus from online restaurant web sites.

11. Comforable regular clothing. Aside from what I said in #1 (that with all the tubes and wires, you're pretty much restricted to the hospital gown), in certain cases, you'll be able to wear things like warm up pants, sweat shirts, pajamas, etc. Bring a change or two of your favorite casual wear. Wear it instead of what they give you. It is a way of inner resistance and rebellion against being a numbered institutional subject. And it keeps you thinking the situation is temporary and you're getting out as soon as you can.

12. Index cards with verses. If you are a Christian, you might want to write some Bible passages on cards that you can keep by your bedside to remind you of words Christ has revealed to us - especially to those who are weak, sick, or oppressed in times like these. Psalms are a good place to start. This is a great gift for a close friend who will be staying in the hospital, too.

Get out of here!

I was told to expect around a week stay in the hospital. I also heard five to seven days. To my great delight and surprise, this morning they discharged me! I did wake up with pretty bad pain this morning, but they figured out quickly how to address it with oral medication. So with pain relatively under control, and all systems in working order, I left. I am amazed and keep thinking there must be something wrong! My response is simply thanksgiving.

Believe it or not, the orders for my leaving were written up by our good friend Judy Wu (now Judy Dominick). You may remember me writing about Judy here or here.



Now some of you might be wondering if I slipped Judy some cash or somehow used my inside connection to get those orders signed. I'm going to invoke patient-doctor confidentiality on that one.

So here I am, back in my hotel room with Christine. I have to stay in Houston at least two nights in case complications arise. Now that I am out of the hospital, I am looking forward to some good rest.

Treating liver mets in stage IV colon cancer

Colon cancer which has spread to the liver has traditionally been seen as inoperable, especially when there are more than one lesions in the liver. MD Anderson's philosophy, which they used in treating me, is showing good results. See this article for more. I had two liver metastases and had 76% of the liver removed in December 2003. The liver is still clean as of August 2007.

Fast escape?

The chest drainage number that has to be low for me to leave was remarkably low today. As a result, to my surprise, they decided to pull the chest tube and told me I might be leaving tomorrow. Wow. I was originally told the tube would be in four or five days. In addition, I got a bunch of other unpleasant stuff unhooked today. This morning I woke up tethered to the hospital room with nine tubes and wires. Tonight I have only two. When we hit zero, I can bolt.

The last major thing left is to pull the epidural and work with oral meds until the pain can be managed. When they find the right dosage and mix for pain to be well under control, I can leave. They began the process tonight by capping off the catheter without removing it and giving me some oxycodone and super-tylenol. They will follow me closely through the night into tomorrow.